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Canavan Foundation Not-for-profit foundation providing information about Canavan disease, prenatal screening, support, and research. http://www.canavanfoundation.org/
Canavan Research Fund The Canavan Research Fund is a not-for-profit organization dedicated to pioneering research that can treat and eventually cure Canavan and other genetic brain diseases. http://www.canavan.org
Canavan Research Illinois Information about this organization as well as about the disease, its research, fund raising and contact details. http://www.canavanresearch.org